Doctors confirmed that baby Anggun is suffering from a rare condition called Nemaline Myopathy, which affects the muscles responsible for movement, including those around the spine, back, neck, and arms.
For Anggun, this condition has left her respiratory muscles too weak to breathe normally. As a result, she has relied on a breathing tube since birth. It wasn’t until early December that baby Anggun underwent a life-saving trachea surgery to improve her airway.